Friday, October 23, 2009

update

Yesterday we had Eme's in depth eval for all areas, including cognitive, motor, speech & physical. She scored above and beyond any child her age. 4 months ago she was failure to thrive and at a 6 month level and just look at her now=0)
However my concerns for her hip area are still there and very valid. There was a team of 4 doing her eval yesterday and after I stripped her naked and had her move from point A to point B they finally saw my concerns and gave her history more power and has set us up for some therapy to do core strengthening.
Eme doesn't squat like a normal child and her flexibility is a problem. She has low muscle tone in her southern region and needs some help learning to distribute the weight differently. They don't evaluate the quality of her movement, just that she can do it.
When we arrived to pick her up in China, her legs automatically fell to the side by her ears and she could maintain that pose. She had zero muscle tone and it was obvious that her legs were used to being separated. Her ligature marks from her time served in the potty chair were placed right below her knees, thus creating this wide spread and causing the problems that she has today. When she learned to crawl, she crawled that funky monkey kinda crawl and her legs always swung out. She walks flat footed, not the heel to toe proper walk and she can not walk without falling down or running into something and she does not have the muscle skills to change terrain. I loved that the therapist took all my concerns seriously and regraded her to qualify her for some therapy. Her history was extensively documented in order for her to qualify and we have some exercises that we will be working on at home with a therapy ball.
Since we've come home from NC, she has been repeating sounds and words more often. She can put 3-4 signs together like: (want more water please) or (want more milk please), but now she is beginning to add the words to them. She doesn't just sign eat, she says the word along with many other words. Up till now, she's been pretty slow to speak clearly, but instead took her shot at a parrot squawk. My girls is catching up at a fabulous rate and I'm really glad that I didn't bring her home and throw her into all the therapies that were requested of me by her pediatrician. All she needed was time. We chose to steer clear of everything until her anxiety levels were down and her trust in us was strong enough to move forward and now we don't have to spend all that time around strangers trying to catch her up because she did it on her own.
They also spoke very highly of her attachment, but let's be honest...a PT, OT & Speech pathologist really have no knowledge on the bonding and attachment process in the high risk child, that is not their field of expertise and I took their thoughts with a grain of salt. Just because my girl knows exactly who Mommy & Daddy are and is quite affectionate and acts just like a normal child, doesn't mean that I don't see a few holes in her attachment that still need to be plugged. We're getting there, but it's all a journey that we are traveling together.
& a big congrats to all the new parents (Dan & Doris)!!! So happy for you!

20 comments:

A Beautiful Mess said...

So glad that you showed them her "naked" walk. You just don't see how she walks unless she is naked!

Together you and I could rule the world we are so smart:) *snort*

Miss you!

Lindsay said...

Glad you managed to get the therapists to listen to you. Sometimes that is half the battle.

Therapy worked really quickly for Hannah and she walks perfectly normally now - hope you quickly see the same results as we did.

Donna said...

Sounds like you're right on top of everything! Sometimes I cringe when I think about how much I didn't know when we brought our girls home.

By the way, looks like you're a fan of Shabby Chic and Pottery Barn Kids too? I think I recognize all of your bedding because we have it too!

Donna
Our Blog: Double Happiness!

Half Gaelic, Half Garlic! said...

So happy to hear that you got such a great report. Sounds like she has come really far since your first check up/evaluation. It just amazes me how she can make such marked improvement in a short period of time. I am so glad that you listened to your gut instinct after your initial meeting.....and again today when you asked them to look at her walk. Sounds like you have a great team of docs.

She looks adorable in her pearls and tulle! Hope you have a great weekend:)

Lisa

Anonymous said...

does eme have crossed eyes as well? my daughter has them

dana said...

Eme's cheeks in this picture are the sweetest things I have seen lately. She looks so healthy and happy. I am glad you got a good report today and are figuring out how to fix the other problem. By the time Eme is all fixed, you should be able to counsel other people!

Have a great weekend.

Dana

PS.... by the way, your crystal ball method you taught me didn't pay off this time, but it should help me out the next..... (:

Catherine said...

What a great report! Also, so thankful that the docs are listening to you and working with you to do your very best for Eme. She has the very best cheerleader and therapist on her side...Mom!

simply t said...

Dear Anon, I'm not sure if you are the same anon that keeps asking this question and leaving remarks about her eyes. If so, I have addressed this question/concern many times already and will no longer discuss it. I don't mean to sound rude, but it's always by an anonymous poster and it's been a repeated remark that I have openly discussed.
Thank you.
management

PIPO said...

Isn't it AMAZING how fast things change for our girls? So much change in so little time.

Glad you got some therapy support for Eme and your concerns are being addressed!

I didn't see the walk in NC - I only saw naked kiss blowing :0)

C is prattling on a lot more since NC too. It's like she got vaccinated with a phonograph needle. Of course, mum was the word for her there...figures.

Sally said...

The difference in this child in a few months is remarkable. That photo is priceless. She is just as cute as can be. You are addressing all of her physical problems aggressively to get her the help she needs to fix her gait problems. You don't hide from reality but tackle her problems one by one. Her well being shows up in that cherubic smile. Before long she'll be saying, "Mom - can we go buy some Louis PLEASE??"

Randi said...

That is a great picture and great news. My little girl is close in age to Eme and came home about a month before Eme. She is going to have her first speech session on Monday. Fingers crossed that both Eme and my Emma will catch up quickly with some support from therapy.

There is something about traveling that helps kids to gain a new skill. My special needs son and Emma both learn new things after a trip. Pretty neat.

La-La-Liene said...

Love the picture! So sweet! And so glad that you are being listened to! I wish that some professionals would realize that not all kids are the same and they don't know everything.

I have a question. How hard was it teaching E to sign? Emi is profoundly deaf in one ear and severely deaf in the other but after they place the tube in a few weeks, they expect she'll only be moderately deaf in the one ear. Then they'll fit her for a bone conductive hearing aid. Anyhow, she has been very stubborn about learning sign. Probably the Hunan spice in her. Any tips or tricks until she can hear the way she should so she can learn to speak?

3D said...

She is so sweet and thanks for the nice words.

Keep smilin!

Kristy said...

All because you are a great mommy and because she belongs to a great family!!!!
Love and blessings, Kristy

3 Peanuts said...

I am so so glad she is progressing so beautifully. I am also glad that you followed your instincts and they were right!

Kim

Sally said...

PS: boy her bedding is beautiful. Love the green and white toile headboard. So classic!

Kris said...

we are their first and best advocates. amazing how far she has come because of your hard work and HER hard work. what a gem she is. so happy for you guys. and glad to hear about all the amazing progress.

Kudo said...

Keep up the good fight for services. They help so much. My Annalise also had very low MT, balance issues and week core strength from being in a crib and hospital bed for the first 2 years. Taking her to Mommy and me gymnastics is really helping with the core strength. Moms know best.

Kim said...

Eme looks so happy and healthy - it brings tears to my eyes to remember and read about where she was and to see what progress she has made with you. : )

Jenn said...

Glad to see that Eme is progressing and thriving with her wonderful family. I swear we are living parallel lives. We have many of the same concerns with our little peanut but are just a couple of months behind you in the process. We are even moving to your neck of the woods in a couple of weeks! Would love to have a recommendation for a sw for post placement reports. I'll hit you up after we are settled...:)